The Mark Shaparin Foundation
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The Mark Shaparin Foundation honors the life and legacy of Mark Shaparin through awareness, education, and action to prevent Sudden Unexpected Death in Epilepsy (SUDEP) with the goal of saving lives.
👤 Joined on 11 April 2026
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- 11 Nis 2026, 01:00
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This week is bittersweet as we get ready to celebrate Mark’s 13th birthday next Wednesday. Every year, we looked forward to making it as special as he made everyone around him feel. Whether it was his fave bday cake or riding in a helicopter, the greatest gift was seeing the happiness on his face.
Show Post2026 NJ Academy of Family Physicians Annual Meeting-TECHNOLOGY IN MEDICINE. Talked about video-assisted & wearable seizure detection devices and monitoring vital signs after a seizure. MORTEMUS study showed that CPR within 3-mins of post-seizure apnea (the cessation of breathing) was life saving.
Show PostJune 5th is National Donut Day. Although Mark is eating a winter holiday themed donut in the picture, his favorite donut was vanilla frosted with sprinkles. On a day like today, Mark would be asking us get donuts the moment he woke up. Learn more about Mark at www.markshaparinfoundation.org
Show PostMark liked soccer, but he loved a good spectacle. He loved the crowd, the energy, doing the wave & cheering when his team scored. He would want the newest jersey. He should still be here begging us to go to a World Cup game & staying up late watching the our play. Go USA! markshaparinfoundation.org
Show PostWe’d like to invite you to The Joanna Sophia Foundation’s Fun Run/Walk this Saturday, June 20th in Queens. Join The Mark Shaparin Foundation team and us help spread awareness about epilepsy and Sudden Unexpected Death in Epilepsy (SUDEP) at runsignup.com/Race/Registe...
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