debmacc.bsky.social

30 April 2025 13:48

My son had Cystic Fibrosis. Ports have been used for CF patients for years as the disease requires frequent IV antibiotic treatments & veins end up scarred.My son was never keen on having one, having witnessed many friends have issues with theirs over the years.They def have their place though.

Toni Choueiri, MD

drchoueiri.bsky.social

02 April 2025 09:37

This weekend, thanks to the support of the @redsox.com, @danafarber.bsky.social & @thejimmyfund.bsky.social gathered @fenwaypark.bsky.social to celebrate the impact of our Campaign. We celebrated our donors who help us defy Cancer together !

Andi Last

missandilou.bsky.social

21 March 2025 00:19

We at Living LFS @livinglfs.bsky.social are awarding a total of $75K to 47 Li-Fraumeni syndrome families in need today, March 20, LFS Awareness Day. My heart is full. 💙💚 #iamlivinglfs #LFSawareness #lifraumenisyndrome #cancer

Turtlemoon

turtlemoon.bsky.social

16 March 2025 12:27

@livinglfs.bsky.social theresaholst.com/2025/03/15/l...

Living LFS

livinglfs.bsky.social

02 March 2025 09:53

𝐓𝐨𝐝𝐚𝐲 𝐢𝐬 𝐌𝐚𝐫𝐜𝐡 𝟏𝐬𝐭! 𝐖𝐞 𝐚𝐫𝐞 𝐬𝐨 𝐞𝐱𝐜𝐢𝐭𝐞𝐝 𝐭𝐡𝐚𝐭 𝐭𝐨𝐝𝐚𝐲 𝐦𝐚𝐫𝐤𝐬 𝐭𝐡𝐞 𝐟𝐢𝐫𝐬𝐭 𝐝𝐚𝐲 𝐨𝐟 𝐋𝐢-𝐅𝐫𝐚𝐮𝐦𝐞𝐧𝐢 𝐬𝐲𝐧𝐝𝐫𝐨𝐦𝐞 𝐀𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬 𝐌𝐨𝐧𝐭𝐡! Check out www.LFSawareness.com to learn more and stay tuned to our social media pages. Donate to help us fund additional LFS Hardship Grants here: livinglfs.org/donate/