EAHAD - European Association for Haemophilia and Allied Disorder
eahad.bsky.social
A multi-disciplinary association of healthcare professionals who provide care for individuals with haemophilia and other bleeding disorders. 🌐 www.eahad.org 📚 https://academy.eahad.org/eahad
👤 Joined on 26 November 2024
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- 26 Kas 2024, 15:28
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
@eahad.bsky.social
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🎥 Missed the EHC #ERIN Webinar on #HaemophiliaB with #Inhibitors? The recording is now available — watch the conversation between clinicians & patient advocates, organised in collaboration with @eahad.bsky.social 👇️ youtu.be/KG3dpFR5V4c?...
Show Post🗣️ Dr Katharina Holstein at the #EHCRoundTable outlines key challenges in #ExtremelyRare #BleedingDisorders: heterogeneous bleeding phenotypes, lack of clinical trials & no established guidelines. More research and European collaboration are urgently needed. @eahad.bsky.social
Show Post🎥 The recording of our #RareDiseaseDay 2026 #Webinar on #PlateletDisorders with @eahad.bsky.social is available on our @EHCTVChannel — patient stories & clinical insights in one session. ▶️ 🔔 Watch & subscribe: youtu.be/ycGuueLXBP0?...
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Povzetek kongresa #EAHAD2026 Potrebujemo še višji standard oskrbe za vse bolnike, ne glede na njihovo trenutno terapijo. Več na: haemophamicus.eu/eahad-2022/e... Hvala vsem za spremljanje, deljenje in vzpodbudo. #hemofilija #motnjestrjevanjakrvi #ozaveščanje #hemophilia @eahad.bsky.social
Show Post🎥 #ERIN Webinar recording now live! Watch our panel discuss #BleedingDisorders of Unknown Cause (#BDUC), diagnostic testing, treatment & patient advocacy. Featuring experts & patient voices, in collaboration with @eahad.bsky.social. Watch now 👇 youtu.be/vMbhTTBnxM8?...
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