RareKids-CAN
rarekidscan.bsky.social
RareKids-CAN is a diverse coalition of partners aimed at streamlining and accelerating rare disease clinical trials and access to innovative treatment for all patients and families in Canada. RareKids-CAN is funded by the CIHR.
👤 Joined on 28 February 2025
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- 28 Şub 2025, 16:13
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❤️ Beğendiği Gönderiler
🚀 First in-person ERDERA National Alignmnet board meeting in Sofia! #ERDERA brought together representatives from across Europe and beyond, alongside European Commission stakeholders, IRDiRC and other partners to reinforce collective alignment and empower research. 🔗 More: https://loom.ly/K2bkDP8
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We are incredibly grateful to everyone who helped make ACCESS’ 3rd Annual Meeting such an energizing and meaningful event. 💛 Thank you for being part of this growing community and for helping move our collective mission forward. 🎗️ #ACCESSForKidsCancer
Show Post📢 Europe taking a leap towards wider recognition of Rare Disease! The European Parliament’s SANT Committee has released a draft report calling for a binding EU #RareDisease Action Framework. 🔗 Read more https://loom.ly/32gEEag
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Pediatric rare diseases may affect small numbers at a time, but together they represent a major challenge. With RareKids-CAN, McMaster researchers & family leaders are building a more coordinated national approach to rare disease trials. pediatrics.healthsci.mcmaster.ca/mcmaster-exp...
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🌍 60+ Global Alliance Organizations Recognize the 5th annual International #MyotonicDystrophy Awareness Day! 💚 We proudly celebrate the remarkable strength & resilience of the DM community around the world. 🌟 Read the full press release at www.myotonic.org/global-allia...
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