rocioinoc.bsky.social
🇵🇪🇺🇸Advertising/Branding/Marketing👩🏻💻Advocate💁🏻♀️World Traveler🧳Francophile🇫🇷Thalassophile🌊Health&Wellness🧘🏻♀️ Runner🏃🏻♀️Volunteer🤝🏼
👤 Joined on 25 January 2025
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- 25 Oca 2025, 05:29
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
@rocioinoc.bsky.social
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In spaces led by #science I bring lived #IBD #patient experience. As a #Crohns patient for 20+ yrs, it’s an honor to serve as a @crohnscolitisfdn.bsky.social Grants Committee Stakeholder reviewer helping evaluate what #research moves forward & why it matters because this work changes lives👊🏼
Show PostToday, I joined a #CMS #roundtable as part of the #Medicare Drug Price Negotiation Program, where my lived experience as a patient will help shape decisions that impact millions 💰 This is yet another way of what #IBD #patient #advocacy looks like behind the scenes 👊🏼
Show PostLiving w/ #IBD can feel isolating. Vivir con la enfermedad de #Crohn o #colitisulcerosa no siempre es fácil-uno se puede sentir muy solo. Por eso existe un #grupodeapoyo virtual en #español para la #EII Si tú, o alguien que quieres, vive con la EII, te invitamos a acompañarnos👇🏼
Show PostI wasn’t sure this would be possible anymore. After 20+ years with Crohn’s disease, surgeries & a spinal injury…I’m hiking Machu Picchu with Team Challenge to raise funds for a cure⛰️🥾 This climb isn’t just mine. 🎯 Goal: $10,000 👉🏼 Donate / share: bit.ly/RocioHikesMa...
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