ACTA2 Alliance
acta2alliance.bsky.social
Supporting families living with Multisystemic Smooth Muscle Dysfunction Syndrome #MSMDS #UltraRare #ACTA2 mutation https://www.zeffy.com/en-US/donation-form/6944a133-de97-4680-8675-ad6847c2d369
👤 Joined on 14 June 2025
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- 14 Haz 2025, 19:19
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
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In Barcelona for Science in Spain 2026, organised by The Marfan Foundation. Four days on Marfan, Loeys-Dietz, vascular Ehlers-Danlos syndrome and related conditions. Interviews with experts from our network to follow. marfan.org/scienceinspain
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The Vascular Voice Network has launched it's brand new Vascular Condition Directory 📢 Visit the webpage at vascularvoice.org/vascular-con... to be signposted to trusted sources of information and support 🤝 @aorticdissectct.bsky.social @acta2alliance.bsky.social @marfantrust.bsky.social
Show Post#RareDiseaseDay2026 www.vascularvoice.org
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This is the first song to greet me in my daily mix. Music is the only thing that makes me feel okay for minutes at a time..... www.youtube.com/watch?v=CsLk...
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