VASCERN | European Reference Network

VASCERN | European Reference Network

vascern.bsky.social

Advancing the diagnosis, treatment, and care of patients with rare multisystemic vascular diseases across Europe. 🔬 Evidence-based guidelines | 🌍 Cross-border collaboration | 📚 Education 📌 Visit us: www.vascern.eu

👤 Joined on 20 January 2025

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  • 20 Oca 2025, 10:20
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @vascern.bsky.social

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European Commission
04 October 2026 09:32

🫀 Cardiovascular diseases are the leading cause of premature death in the EU. 🛡️ Yet, many can be prevented. We are stepping up our work on prevention by supporting EU countries in designing and implementing cardiovascular health checks at national level. 👉🏽 link.europa.eu/rKnx8n

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It's a match! Egi met Dr Rifino at our Summer School in Paris. Two months later, she was training with his team in Milan, the first VASCERN Alumni placement. Read how their paths crossed ➡️ vascern.eu/news/vascern...

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Our Paediatric and Primary Lymphoedema (PPL) Working Group has published ➡️ an e-learning course on primary lymphoedema and ➡️ an updated Do's and Don'ts factsheet covering the everyday questions patients and doctors ask most. Read more and access both resources: vascern.eu/news/new-ppl...

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🧬 Interested in the latest clinical trial developments in osteogenesis imperfecta? Join OIFE’s free #ClinicalTrials Update 2026 webinar for an overview of ongoing OI trials. 📅 13 October | 20:00 CET 👉 Register: https://go.eurordis.org/trial-update-oife

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#GroupeDeParole 💬 | En partenariat avec l'association VEDS France, un groupe de parole est organisé portant sur : « Comment se sentir légitime face à cette maladie invisible ». 📅 Mardi 15 septembre ⏰ 18h30 📍 Visioconférence Inscription gratuite et obligatoire : docs.google.com/forms/d/e/1F...

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