Aniridia Network
aniridianetuk.bsky.social
UK charity (1176792) for people affected by #aniridia, a rare genetic eye condition meaning absence of the iris. Symptoms include poor sight or blindness, sensitivity to light and several other effects.
👤 Joined on 16 November 2024
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- 16 Kas 2024, 10:45
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
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I used to work with a guy with aniridia. He would joke about silly eye doctors who insisted they still put in the "dilate the pupils" drops … "there is nothing to dilate!"
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A first-in-human clinical trial reported improved #vision after #StemCellTreatment in patients with #AniridiaRelatedKeratopathy (ARK), a rare genetic #EyeCondition.
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Oh, and just for funsies, my brother was born with aniridia., a congenital birth defect. He's legally blind, and it's permanent. For many, many years, he had to go and see a doctor to get a report to say that he was still blind so he could continue to receive his disability support pension.
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scitechdaily.com/dual-stem-ce...
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“A dual stem cell scaffold improved vision and eye surface scores in a small first-in-human trial for aniridia-related keratopathy.”
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