Good luck Michelle. I know some people really get helped by the meds while, for others, it's like the old saying, "The remedy worse than the disease." I think my docs were also surprised that I don't get migraines - lucky me! I just wish you (& all Americans) had access to universal healthcare.

Show Post

You know how on an episode of House how they work tirelessly to diagnose and treat a patient… yeah that’s not real life. It took YEARS to give me a diagnosis! #iih #medicaltrauma #chronicalyfabulous #chronicillness #ih #spoonies #spooniesky #mcas #blacksky #disabled #brainpain #invisibleillness

Show Post

Thank you for the positive vibes! I finally found my team of doctors and I seem to be doing better than I was before, I was literally exhausted after simply taking a shower. I reached out to the best doctors familiar with my condition and MADE them talk to each other. It worked! #spooniesky

Show Post

Well done! It's scary though, because there will be lots of patients less able to get that to happen and so they won't get the care they need. Healthcare shouldn't depend on wealth, determination or eloquence. Really pleased for you though. You can start to enjoy life more again.

Show Post

Hi David, I’m In a similar situation in that I have facial and head pain. Do you have an official diagnosis?

Show Post