longhaulerspodcast.bsky.social
We’re a community of Covid longhaulers who have been brought together by this illness. We share the stories of folks who have been through it, who are going through it, and how they’re surviving it. #LongCovid #CovidIsntOver #CovidIsAirborne #CovidSky
👤 Joined on 26 November 2024
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@longhaulerspodcast.bsky.socialYou know, I always thought when I got my first “why are you wearing a mask” jerk I’d use my trusty “when are you going to stop using toilet paper and toothpaste” but I jumped straight to “did you know long covid can cause erectile dysfunction that stops you getting an erection” 🤷♀️
Show PostProud of #MEAction for fighting to #SaveMedicaid & the #ACA so creatively this Halloween! We've got an advocacy action for you! You don't have to have #MECFS or #LongCOVID: this is a fight for all of us. Read through this 🧵to find out how to participate 💪 youtu.be/E-8B0NpENtk
Show PostProfessor Michael Kidd: Acknowledges that 25% of people with ME/CFS are bedbound or housebound and there is a high economic burden to the disease, though says the true cost is lives constrained, opportunities lost and voices unheard.
Show PostProfessor Michael Kidd: Despite clear evidence of biomedical nature of ME/CFS, stigma persists. The challenge is to move from stigma to science, from invisibility to action.
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