Rare Disease Day Official
rarediseaseday.bsky.social
The global awareness raising campaign for people living with rare diseases. 🌍 28 February 2027
👤 Joined on 02 October 2025
100
Followers
10
Following
62
Total Posts
📜 Kullanıcı Geçmişi
- 02 Eki 2025, 09:01
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
@rarediseaseday.bsky.social
🚫 Blokladığı Kullanıcılar
Bu kullanıcının blokladığı kullanıcı bulunamadı.
❤️ Beğendiği Gönderiler
✅Questions to @ec.europa.eu & EU Council were adopted in @sant.europarl.europa.eu (author @stinebosse.bsky.social) - How will EC respond to impact of recent US pharmaceutical pricing & trade policies on EU patients, health systems & industry? Adopted⬆️20⬇️0↔️3 Text: link.europa.eu/JDpmW6 1/
Show Post
📢 Europe taking a leap towards wider recognition of Rare Disease! The European Parliament’s SANT Committee has released a draft report calling for a binding EU #RareDisease Action Framework. 🔗 Read more https://loom.ly/32gEEag
Show Post