ERN-RND
ern-rnd.bsky.social
European Reference Network for Rare Neurological Diseases (ERN-RND) to improve diagnosis, care & treatment of RND patients. Free webinars: https://www.ern-rnd.eu/education-training/online-medical-education-for-rare-neurological-diseases/
👤 Joined on 20 January 2025
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- 20 Oca 2025, 16:51
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📧✨ The fourth edition of the JARDIN newsletter is coming soon! Subscrite today and be among the first to discover: 🌍 Updates from work packages 💼 Highlights from Member States 📅 ERN news 👥 Stories and developments impacting people living with #RareDiseases 👉 https://jardin-ern.eu/newsletter
Show Post🦓✨ Over the past weeks, we have shared the stories of people living with a rare disease. 💜 Thank you to everyone who so generously shared their personal stories for #RareDiseaseDay. 🌐 Explore them and share them with your networks 📚 https://jardin-ern.eu/european-reference-networks/patient-stories
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For years, patients with lymphoedema were told not to exercise. The evidence says otherwise. 5 key takeaways from our recent webinar on physical activity and primary lymphoedema. Watch the full recording: youtu.be/MQxDx1m57ic?...
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🚀Register now for the Session 6 of the ERN-EuroBloodNet Topic on Focus on Inherited Platelet Function Disorders! This accredited educational program is designed for healthcare professionals. Register now and don't miss it! eurobloodnet.eu/education/to... #ERNs #ERNeu #hematology
Show Post🗣️Patients’ rights in cross-border healthcare and the European Reference Networks #ERNs María del Mar Mañú Pereira, Scientific Coordinator of ERN-EuroBloodNet, will contribute to Session 3 of the program in her role as Vice-Chair of the TRIO of the 24 ERNs. eurobloodnet.eu/news/716/hig...
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