Irish ME/CFS Association
irishmecfsassoc.bsky.social
Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research NB: Posts ≠ advice. Registered Charity RCN 20100254. #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME. Some #LongCovid items also
👤 Joined on 03 October 2023
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- 03 Eki 2023, 15:16
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@irishmecfsassoc.bsky.social - 07 Kas 2023, 22:50
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3/ I use a Garmin Smartwatch (particular model: Forerunner 165) and Garmin Connect app. I didn’t do any research so not saying this is particularly good, it’s just people have been asking.
Show PostI went way outside my energy envelope last night for a social event but glad to see a new-ish pacing "trick" seems to be helping me a bit #MyalgicEncephalomyelitis #MEcfs #CFS #PwME #Pacing 1/
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Of course, the eligibility criteria and the recovery criteria weren't the only changes from protocol (or pre-protocol). They changed the primary criteria too. Tom Kindlon noticed this, and tried to find out why. www.bmj.com/bmj/section-...
Show Post2/ From: "Assessment of Post-Exertional Malaise (PEM) in Patients with ME and CFS: A Patient-Driven Survey" (2019) by a Leonard A. Jason team pmc.ncbi.nlm.nih.gov/articles/PMC... #PostExertionalMalaise #PEM
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Journo request 🗞️: I'm looking to speak with California law experts (healthcare regulatory/admin law) about compliance on a #LongCOVID bill, AB 3119, and would be grateful to hear more expert perspectives 🙏 calmatters.digitaldemocracy.org/bills/ca_202...
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