ThereForME
@thereforme.bsky.social did:plc:wjbaponwuqichcsh2fiwono5
Working towards a world where healthcare, wider public services, & society are truly there for people affected by ME. Registered Charity in England and Wales: 1218590 www.thereforme.uk
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Resumo
ThereForME (@thereforme.bsky.social) é um usuário do Bluesky desde 10 novembro 2024. Tem 1.666 seguidores, segue 70 contas e publicou 397 posts.
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Thank you for all that you do. You’re a big asset to us all and one that was sorely needed.
Ver postPerhaps out of all symptoms relating to ME/CFS, the PEM/PESE, loss of adaptability, and hypersensitivity, are the most crippling. Compared to when I was mildly or moderately affected, those symptoms stand out as becoming orders of magnitude worse. Fatigue and pain did not worsen as much as that.
Ver postAlem Matthees @alemmatthees.bsky.social, the ME/CFS patient in Perth, Australia, who "liberated" the raw PACE trial data, has been communicating again. Here are some of his observations about being severely ill virology.ws/2026/10/30/t...
Ver post🔥Powerful words by @bethdobbin.bsky.social in The Times. We agree 💯 with Beth. It's time to radically change the outdated, demedicalised, bps clinics that do not meet clinical need.
Ver postFor UK @thereforme.bsky.social have put together a template letter which you can use to write to your MP asking them to support olympian Beth Dobbin @bethdobbin.blusky.com’s call for research funding docs.google.com/document/d/1...
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