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POTS, MCAS, hEDS Trifecta Support Group

@arden-ewen-tsg.bsky.social did:plc:mrfaimdvpefxtphe56j4kf7w

Looking for a support group for Dysautonomia, the trifecta, and comorbidities? I'm struggling, you're struggling, we don't have to do it alone. Welcome! See the pinned post for community guidelines.

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POTS, MCAS, hEDS Trifecta Support Group (@arden-ewen-tsg.bsky.social) é um usuário do Bluesky desde 22 abril 2026. Tem 18 seguidores, segue 24 contas e publicou 47 posts.

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  • Casey@zombievegan.bsky.social

    Yeah the dentist did the shots in the gum then took a 12 inch needle and put it into my mouth down into the hinge of the jaw , still felt everything raised my hand to notify pain “almost done” I hate it here :/

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  • Casey@zombievegan.bsky.social

    I need to get into a bigger chat room. I wonder how many people with hEDS have so much trouble with the dentist. Even them using Articaine and knowing I’ve only properly been numbed up one time in my life. They just can’t numb me. It’s a kin to medieval torture. 😩

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  • Casey@zombievegan.bsky.social

    Awesome can’t wait. It would be insane to wake up with no pain even one day a week 🤪 id be so productive

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  • Casey@zombievegan.bsky.social

    Didn’t even know it existed thanks 🙏 I’ll give it a listen

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