POTS, MCAS, hEDS Trifecta Support Group

POTS, MCAS, hEDS Trifecta Support Group

arden-ewen-tsg.bsky.social

Looking for a support group for Dysautonomia, the trifecta, and comorbidities? I'm struggling, you're struggling, we don't have to do it alone. Welcome! See the pinned post for community guidelines.

👤 Joined on 22 April 2026

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  • 22 Nis 2026, 18:55
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @arden-ewen-tsg.bsky.social

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Casey
10 October 2026 13:45

Yeah the dentist did the shots in the gum then took a 12 inch needle and put it into my mouth down into the hinge of the jaw , still felt everything raised my hand to notify pain “almost done” I hate it here :/

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Casey
20 September 2026 02:37

I need to get into a bigger chat room. I wonder how many people with hEDS have so much trouble with the dentist. Even them using Articaine and knowing I’ve only properly been numbed up one time in my life. They just can’t numb me. It’s a kin to medieval torture. 😩

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Awesome can’t wait. It would be insane to wake up with no pain even one day a week 🤪 id be so productive

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Didn’t even know it existed thanks 🙏 I’ll give it a listen

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K
29 April 2026 22:03

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