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Naomi Harvey PhD

@naomidharvey.bsky.social did:plc:sqxcta67dlxiavwuq5zthipo

Zoologist & veterinary research. She/her. 22yrs with #MEcfs Pro-vax but vaccine injured. Life on pause due to moderate/severe ME/CFS ♿️ Patient Expert in ME/CFS, POTS and syndromic Long Covid. Please excuse my typos.

Sur Bluesky depuis le

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3 837
Abonnements
990
Posts
1 015
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0

Résumé

Naomi Harvey PhD (@naomidharvey.bsky.social) est sur Bluesky depuis le 19 septembre 2023. Le compte a 3 837 abonnés, suit 990 comptes et a publié 1 015 posts.

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  • Steve Fifield@stevefifield.bsky.social

    💯 and I still believe ability to properly communicate what & how debilitating PEM is (to someone who has & never may experience it), is the greatest challenge we face. Considering this frequently recently - e.g. Exactly how similar communication issues were successfully overcome in the past? ⭐️

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  • Andreas Longva@andlon.bsky.social

    I broadly agree, but whatever is chosen does have tangible consequences for the diagnosis of patients who tend to have relatively short PEM duration (a day or so). "Is it PEM or not?" I don't know what the *right* answer is, but it's fundamentally a trade-off between inclusion and specificity..

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  • Steve Fifield@stevefifield.bsky.social

    Bless you Naomi 🙏 And yes, that situation sounds extremely familiar to me at the moment.

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  • Adam@abrokenbattery.bsky.social

    My #MECFS Scandal explainer has just hit half a million views on YouTube. I remember worrying that 27 minutes was too long and nobody would watch it. I never expected it to get so many. Thank you to everyone who shared it! Here’s the trailer 👇

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  • Steve Fifield@stevefifield.bsky.social

    This is such excellent work, @naomidharvey.bsky.social @ciarawrightphd.bsky.social @sunsopeningband.bsky.social and everyone else involved 🙏

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