Unremarkable Me

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• A Chronic Voice@achronicvoice.com08/09/2026 14:09

  "We’ve all been shown the neat.. #grief models. Denial. Anger. Bargaining. #Depression. Acceptance. Presented like a polite checklist u tick off on the way to #emotional enlightenment.. makes sense if your #loss is static. #ChronicIllness is not": buff.ly/UHgOg9y by @unremarkableme.bsky.social

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• Still Rolling@stillrollingoutdoors.com26/07/2026 17:54

  This is a great post for those on either side of it... Looking back, early on, the grief, loss and mourning that comes with illness could be consuming. My shield and cope was to carry on like it was nothing and that I was fine. It took a longtime to recognize others were involved.

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• Bymyown Pawz@bymyownpawz.bsky.social30/04/2026 17:22

  I've not touched alcohol in 20 years. I've had an unfortunate glass here & there between that time, but I can't imbibe if I ever go to parties (I don't go to parties)

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• JustAnne@smartpatient.bsky.social25/01/2026 09:35

  This is such important work. Kids often sense something is different anyway, and honest age-appropriate conversations build trust. The "love doesn't disappear when bodies get complicated" framing is beautiful. Thank you for creating this resource.

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• JustAnne@smartpatient.bsky.social17/01/2026 08:34

  This is such an important topic. Kids are more perceptive than we give them credit for, and honest, age-appropriate conversations help them feel secure rather than scared. Love that you're sharing this resource for the EDS and chronic illness community.

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