The Mark Shaparin Foundation
@markshaparinfdn.bsky.social did:plc:j4ma2kthnpxulfj3aloj3vlc
The Mark Shaparin Foundation honors the life and legacy of Mark Shaparin through awareness, education, and action to prevent Sudden Unexpected Death in Epilepsy (SUDEP) with the goal of saving lives.
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The Mark Shaparin Foundation (@markshaparinfdn.bsky.social) est sur Bluesky depuis le 11 avril 2026. Le compte a 124 abonnés, suit 757 comptes et a publié 50 posts.
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Last Call for Tickets! Only a few tickets remain! Don’t wait—get your tickets today and be part of this special evening. 🎶 Mark’s Music Night 📅 Sunday, October 18, 2026 🕰️ 7:30 - 9pm 📍 Carnegie Hall, NYC ⭐ Featuring Tamar Kurdadze with Guest Artists Tickets: markshaparinfoundation.org/musicnight
Voir le postWe met 500+ family physicians at FMX 2026-annual meeting of American Academy of Family Physician & educated them about SUDEP. Only 10 had heard of SUDEP before. Several had epilepsy themselves & had never heard of SUDEP from their own neurologist/epileptologists #sudep #sudepawareness #stopsudep
Voir le postChatGPT’s Advice to Cut Her Seizure Drug Led to Devastating Consequences - The New York Times www.nytimes.com/2026/10/27/w... #epilepsy #epilepsyawareness #SUDEP #sudepawareness #endtheSUDEPsecret
Voir le post“Missing a single dose of an AED (antiepileptic drug) can be fatal…” This simple sentence may have saved Bowen Wan’s life. Yet, most of the people we have met with epilepsy have never heard this said by their doctors. This free article is a must read at neurology.org and on pubmed.gov
Voir le postThis week is bittersweet as we get ready to celebrate Mark’s 13th birthday next Wednesday. Every year, we looked forward to making it as special as he made everyone around him feel. Whether it was his fave bday cake or riding in a helicopter, the greatest gift was seeing the happiness on his face.
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