#MEAction Network
@meactnet.bsky.social did:plc:hedpcce7vylvdgibxuxjsuzb
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet #pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
Sur Bluesky depuis le
- Abonnés
- 5 951
- Abonnements
- 571
- Posts
- 1 823
- Jours dans les classements
- 0
Résumé
#MEAction Network (@meactnet.bsky.social) est sur Bluesky depuis le 3 octobre 2023. Le compte a 5 951 abonnés, suit 571 comptes et a publié 1 823 posts.
Présence dans les classements
Les meilleurs jours où les posts de ce compte sont entrés dans le top quotidien de Debya.
Ce compte n’est encore apparu dans aucun classement quotidien.
Posts aimés récemment
J’aime publics du réseau Bluesky.
1/4 📢 A short statement from ThereForME: We wanted to be very clear, following the health minister James Frith's comments on @goodmorningbritain.bsky.social this morning that we do not agree that the Final Delivery Plan for ME was co-produced with orgs representing people with ME.
Voir le post“This health issue has nothing out there for you… There are specialist clinics, but they don’t have any doctors… It’s life decimating. I’m in bed 22 hours of the day” Former Olympic sprinter @bethdobbin.bsky.social on her letter calling on PM Andy Burnham for more #MECFS research funding.
Voir le postThis is an important point. Whilst the development of the DHSC Final Delivery Plan for ME was a huge step forward, most of the suggestions that patients, clinicians like me and researchers made were rejected as the plan was not funded.
Voir le postKicking off #PaceToTheCapitol with an event at their state capital, #MEAction North Carolina (@meactionnc.bsky.social) prioritized the Medicaid campaign So happy to see our "neighbor state" out & about - as we know the unseen costs of "showing up" & deeply appreciate their efforts today💙
Voir le postGo, @meactionnc.bsky.social !
Voir le post
Comptes bloqués
Sur Bluesky, les blocages sont publics.