Alem Matthees
@alemmatthees.bsky.social did:plc:z2al2flt26qu3kzv3pmzqt54
Dissident with severe ME/CFS who pursued PACE trial FOIA dataset reanalysis. I was interested in the mind-body problem in philosophy and psyche-soma connection in medicine. I realised not all that glitters is gold and the emperors often have no clothes.
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Zusammenfassung
Alem Matthees (@alemmatthees.bsky.social) ist seit 13 September 2026 auf Bluesky. Das Konto hat 398 Follower, folgt 39 Konten und hat 248 Posts veröffentlicht.
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This was a long and challenging interview but I’m pleased with their summary in post #3. #MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
Post anzeigen“When you become ill, all you want is for others to be compassionate and understanding. Yet…with something like ME (#MyalgicEncephalomyelitis), that not even your doctor comprehends, it’s a different story… Even if you mean well, stop trying to fix me.” https://buff.ly/5BMRQuF
Post anzeigenThings are not changing because of some deep mystery or conspiracy. The medical profession simply refuses to take such illnesses seriously and have no issue with lying about it. None of this is complicated or technical, it's pure human failure.
Post anzeigenLetter from @tessamunt.bsky.social calling for a substantial increase in government funding for ME/CFS research: www.thetimes.com/article/6eba...
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