My mom was diagnosed w/MS in the late 1970s. She was told for years she was being hysterical. Her MS has been in remission for about a decade but the damage is long since done.

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I was told I have the gene or something in my blood for Sjögrens they said it was connected to my dry mouth but it wasn't connected to the issue she was looking for----no one said they were CONNECTED TO MY MIGRAINS. I havent heard anything else about it since my rheumatologist visit years ago

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For years, I had eye doctors telling me that I could not get a prescription for contacts because I had unbelievably dry eyes. Nobody followed up on that until I started having other issues.

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I have sjögren’s. I was diagnosed in my 20s and they originally thought it might be lupus. It impacts my eyes. A lot. But it can impact much more than that. Just like migraines aren’t just headaches, Sjögrens isn’t just dry eyes and mouth.

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So much overlap btw Sjogrens, lupus, MS, fibro, and other conditions. It's why so many patients go a decade or longer before a diagnosis, if it's even the right one.

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