christina4hope
christina4hope.bsky.social
👋ME/CFS ,Fibromyalgia , lyme Boriliose,Longcovid,MCS ,Vax Injured (not corrona vax),Hearing loss ect… Posts English and German. Bavaria ,Germany
👤 Joined on 15 October 2023
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- 15 Eki 2023, 12:19
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
@christina4hope.bsky.social - 13 Kas 2023, 17:03
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❤️ Beğendiği Gönderiler
#Blog 👇 👇 with slides and audio. My daughter was 14 when she developed #LongCovid & is now 19 with #LongCovid All the treatment and support she has received has been private & at great cost. We must do better for children with #LongCovid #LongCovidKids www.bmj.com/content/386/....
Show PostTests that left me worse off. Fighting for the support I need, while guiding my daughter through the same nightmare.Friendships fell away. People moved on while my life stayed stuck in uncertainty. It hurt then, and sometimes it still does. But their choice to walk away taught me something valuable.
Show Posta child on the same journey, and as the founder of @longcovidkids.bsky.social. These years have been exhausting. Not just because of relentless symptoms, but because of judgement & dismissal. Having to justify being ill. Being pushed through assessment hoops meant for conditions nothing like mine.
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