COVID-19 Longhauler Advocacy Project

COVID-19 Longhauler Advocacy Project

c19lap.bsky.social

COVID-19 Longhauler Advocacy Project is a patient-led #LongCOVID 501(c)(3). Visit longhauler-advocacy.org/lcamonth26 to learn more and take action this #LongCOVIDAwarenessMonth. #LongCOVIDAwareness #OneInfectionAway

👤 Joined on 11 November 2024

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  • 11 Kas 2024, 01:49
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @c19lap.bsky.social

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❤️ Beğendiği Gönderiler

I have made peace with not regaining my former life. I'm learning to make jewelry. I spend a lot of time meditating. But most days I still feel invisible, even to family members who seem insistent in their denial of my reality. Please share my story.

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Except that despite everything I tried to regain my health only made it worse. I finally found a legit long covid doctor just this year. I have some official diagnoses and a provider who actually cares, but no cure.

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I was forced to give up my career at what should've been its apex. I told my PCP I thought I might have long covid and she casually agreed, unconcerned. All cases spontaneously resolve in a matter of months, right?

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In 2022, I lost my dad to pancreatic cancer, struggled in my first full time admin role in an understaffed school, and became increasingly overwhelmed by a host of physical and mental symptoms that I could no longer blame on menopause.

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I was transitioning into an administrative position at my school, blaming a host of new symptoms on menopause and stress.

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