c19lap.bsky.social
COVID-19 Longhauler Advocacy Project is a patient-led #LongCOVID 501(c)(3). Visit longhauler-advocacy.org/lcamonth26 to learn more and take action this #LongCOVIDAwarenessMonth. #LongCOVIDAwareness #OneInfectionAway
👤 Joined on 11 November 2024
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@c19lap.bsky.socialI have made peace with not regaining my former life. I'm learning to make jewelry. I spend a lot of time meditating. But most days I still feel invisible, even to family members who seem insistent in their denial of my reality. Please share my story.
Show PostExcept that despite everything I tried to regain my health only made it worse. I finally found a legit long covid doctor just this year. I have some official diagnoses and a provider who actually cares, but no cure.
Show PostI was forced to give up my career at what should've been its apex. I told my PCP I thought I might have long covid and she casually agreed, unconcerned. All cases spontaneously resolve in a matter of months, right?
Show PostIn 2022, I lost my dad to pancreatic cancer, struggled in my first full time admin role in an understaffed school, and became increasingly overwhelmed by a host of physical and mental symptoms that I could no longer blame on menopause.
Show PostI was transitioning into an administrative position at my school, blaming a host of new symptoms on menopause and stress.
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