cppedsa.bsky.social
An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians about the Ehlers-Danlos Syndromes and related conditions. https://chronicpainpartners.com
👤 Joined on 16 November 2024
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@cppedsa.bsky.socialHi all. Sorry I've sort of dropped off for a bit. I'm having to focus every bit on my budding photography business now to stay housed so I confess I'm a bit distracted. So sorry to hear we lost Dr Tennant recently too. Another mensch. 🥺✌️
Show PostI was diagnosed with #EDS 6 years after @cppedsa.bsky.social began The resources John Ferman and others at Chronic Pain Partners/EDS Awareness shared were invaluable, especially in an era before social media made research, clinician and medical care info easier to find Thank you 💜
Show PostSo sad I can’t make it; I hope maybe you’ll consider doing another event if there’s interest!
Show Post"A new study..is raising..concerns about #FishOil #supplements, esp for people who experience repeated mild traumatic #BrainInjuries ..often promoted as protective for the #brain, could actually interfere with #healing after injury.": buff.ly/U57L8cV via sciencedaily #MedSky #ResearchSky #OmegaOil
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