Chronic Pain Partners - EDS Awareness

Chronic Pain Partners - EDS Awareness

cppedsa.bsky.social

An online resource for the EDS and HSD community. We provide informative resources and education for patients, families and physicians about the Ehlers-Danlos Syndromes and related conditions. https://chronicpainpartners.com

👤 Joined on 16 November 2024

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  • 16 Kas 2024, 04:53
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @cppedsa.bsky.social

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OhTWIST
19 August 2026 20:12

Hi all. Sorry I've sort of dropped off for a bit. I'm having to focus every bit on my budding photography business now to stay housed so I confess I'm a bit distracted. So sorry to hear we lost Dr Tennant recently too. Another mensch. 🥺✌️

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thankful

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I was diagnosed with #EDS 6 years after @cppedsa.bsky.social began The resources John Ferman and others at Chronic Pain Partners/EDS Awareness shared were invaluable, especially in an era before social media made research, clinician and medical care info easier to find Thank you 💜

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So sad I can’t make it; I hope maybe you’ll consider doing another event if there’s interest!

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"A new study..is raising..concerns about #FishOil #supplements, esp for people who experience repeated mild traumatic #BrainInjuries ..often promoted as protective for the #brain, could actually interfere with #healing after injury.": buff.ly/U57L8cV via sciencedaily #MedSky #ResearchSky #OmegaOil

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