IPOPI

IPOPI

ipopi.bsky.social

IPOPI is a non-profit international organisation and the leading advocate for patients living with primary immunodeficiencies (PID) and associated conditions worldwide.

👤 Joined on 04 February 2025

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  • 04 Şub 2025, 09:43
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @ipopi.bsky.social

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07 July 2026 14:01

🌍 This week, EvaMobs co-coordinator Diana Lousa joined the IPOPI Global Stakeholders' Summit 2026, where patients, researchers and clinicians came together to discuss current challenges and new approaches to antiviral diseases and immunodeficiencies. @ipopi.bsky.social @itqbnova.bsky.social

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📣Did you know that we seek your comments on testing proposals before #EU_REACH registrants conduct new animal tests? Your scientific insights could help avoid unnecessary testing. We have currently over 100 open consultations. Help us find #AlternativesToAnimalTesting. 🔗https://fcld.ly/currenttpsl

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Europe must reinforce pensions to deliver security across generations. At our #EESCPlenary, we adopted an opinion to build trust in supplementary pension savings and help improve retirement incomes while putting more private savings into the economy. Our opinion: link.europa.eu/qKJkfQ

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🆕Investigating harm with humanity - practical guidance for NHS investigators, clinical teams and legal representatives. A new resource from Corinne Cope featured on the hub today. www.pslhub.org/learn/patien... #patientsafety

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