A Cure In Sight
acureinsight.bsky.social
A Cure In Sight is a "for patient by patient" nonprofit to help patients navigate their diagnosis of ocular melanoma, and provide financial assistance, education, and support. A Cure in Sight bringing clarity, support and compassion. acureinsight.org
👤 Joined on 18 November 2024
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- 18 Kas 2024, 20:00
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
@acureinsight.bsky.social
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In 2018 I was dx w/ ocular melanoma ,a 6inamillion incurable cancer . Incurable doesn’t mean terminal ,yet. I lost my right 👁️ because of it . Once things get settled on here I will start badgering yall to wear sunglasses !! 💙✌🏼😎
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I was dx'd with ocular melanoma in February, at age 59; the same age when my mom was diagnosed with it. She is now 86 and is doing great. She is my inspiration. Genetics show us to have MBD4 variant.
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@peaceplez.bsky.social living with ocular melanoma too. 10 year survivor.
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100%, my treatment for metastatic ocular melanoma would not exist in single payer. Who is complaining about cost? Others do...I don't because I know too many people (like me), who would be dead were it not for the treatment I'm on which....costs a shit ton, and was only FDA approved 2 years ago
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I have ocular melanoma. Only diagnosed this year. I had brachytherapy and will have scans every 6 months. It cost me the cost of transportation to get to the hospital. Free healthcare at point of use is often taken for granted in the UK
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