hdbuzzfeed.bsky.social
Huntington’s disease research news. In plain language. Written by scientists. hdbuzz.net Editors - @sjh508 @rjharding
👤 Joined on 06 February 2025
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@hdbuzzfeed.bsky.socialI have seen families argue for years with someone who couldn't let a subject go, and everyone ended up hurt and blaming each other. Knowing it's a symptom of the illness takes the blame out of the room, and that matters a great deal for the whole family.
Show PostEarlier this month HDF hosted 300 of the world’s experts in HD & other neurological diseases to share their latest discoveries. @hdbuzzfeed.bsky.social posted live updates on BlueSky. On 9/9 they’re joining us to share some highlights. Mark the date! Register Now: us06web.zoom.us/webinar/regi...
Show PostIf you've got stage 2 HD and want to do a science, here's a new Phase 1 study for a potential injectable therapy. They've got a cunning plan for getting treatments across the blood-brain barrier.
Show PostRachel Harding & Leora Fox from @hdbuzzfeed.bsky.social will join us on 9/9 to share the buzz from HDF’s recent HD2026 Symposium. They'll recap some of the exciting science from the meeting and hold a live Q&A. Register Now: us06web.zoom.us/.../501.../W... #curehd #HD2026 #researchspotlightwebinars
Show PostThanks, Leora Fox & Rachel Harding @hdbuzzfeed.bsky.social, for the excellent summary of my presentation at @hdfcures.bsky.social Meeting on the #HUNTIAM clinical trial (Thiamine+Biotin) for HD, including the evidence that originated it. 👇👇👇 en.hdbuzz.net/hd2026-milto... @cbm-csic-uam.bsky.social
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