foyled.bsky.social
👤 Joined on 21 July 2024
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How many young people suffer Ehlers-Danlos Syndrome (EDS) or associated vascular compression syndromes? No treatment in Aotearoa NZ and little understanding by doctors. Story tells of 2 families fundraising for overseas treatment. I know others. Why no NZ help? #NZpol www.stuff.co.nz/society/3607...
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