Santanna
santanna86.bsky.social
Artist, Writer, Chaos Witch 🧙♀️, Mother to 👭👬, Grandmother to 👶 Fiancé 💍, Sister, Clairvoyant 🔮, Tarot Reader🪬, Spell Caster🧿, Pet Mom 🐕🐕🐈, Educated👩🎓, Opinionated🗣, ♈️, Living with Ehlers Danlos Syndrome and Chronic Illness..
👤 Joined on 21 November 2024
705
Followers
497
Following
283
Total Posts
📜 Kullanıcı Geçmişi
- 21 Kas 2024, 21:35
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
@santanna86.bsky.social
🚫 Blokladığı Kullanıcılar
❤️ Beğendiği Gönderiler
This is sad. My MRIs were normal, the brain & spine one. If your spinal leak is old, it can be nearly 20% of cases. A dynamic CT myelogram is needed. youtu.be/izQp6Ishk9I
Show PostSorry! 😢 Not surprised though.
Show PosthEDS is apparently linked to venous fistulas (the dura mater could be weak and break easier). I don’t have hEDS just a Sjögren with a very mild dryness.
Show PostYes. Bern score was 0 🤓 Apparently, it’s not that rare. Once the acute phase is passed, your MRI becomes normal. 20% of patients with venous fistulas have normal MRIs.
Show PostI had a spinal CSF leak with a completely normal brain MRI
Show Post