medidier.bsky.social
ME after covid infection Feb'22. Bedbound. 🛌 #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪
👤 Joined on 04 November 2023
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@didacgp.bsky.social@didacgp.bsky.social → @medidier.bsky.socialFive years ago, Beth Dobbin was an Olympian Today, ME leaves her in bed 22 hours a day Even this interview could cost her months of health But she spoke anyway, because millions are suffering in silence, and she knows her voice might help them be heard www.bbc.com/sport/athlet...
Show PostA blog about the multiple reasons why I keep fighting. Why I thus far stay alive. "The fight against the injustice done to the patient community is a big driver. I just can't and won't shut up about it!!!” anilvanderzee.com/staying-aliv... #pwme #myalgicE #millionsmissing #severeME #MECFS
Show PostThere are no commissioned services or specialists within the NHS. This means people diagnosed with #ME are forced to self-fund appointments with private ME specialist doctors, of which there are only a handful of in the country, all with incredibly long waiting times.
Show PostThis from Beth Dobbin 👇 is why #ME patients avoid A&E, ringing the Dr, doing testimonial videos to raise awareness, talking to HCPs. We often can’t talk to our families or friends, our carers or helpers. Often a case of choosing between talking or eating. This is the reality 🤐
Show Post“Just having a conversation… can impact you afterwards. When I say impact you, you feel like you're dying basically.” Former Olympic sprinter Beth Dobbin describing post-exertional malaise the hallmark symptom of #ME.
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