Didier

Didier

medidier.bsky.social

ME after covid infection Feb'22. Bedbound. 🛌 #ThereForME #GreatestMEdicalScandal #PEM 🇬🇧🇲🇫🇪🇦🇧🇪

👤 Joined on 04 November 2023

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📜 Kullanıcı Geçmişi

  • 04 Kas 2023, 15:12
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @didacgp.bsky.social
  • 12 Kas 2023, 22:13
    🔄 Profil bilgileri güncellendi
  • 18 Eki 2024, 07:56
    ✏️ Kullanıcı adı değişti: @didacgp.bsky.social → @medidier.bsky.social

❤️ Beğendiği Gönderiler

Five years ago, Beth Dobbin was an Olympian Today, ME leaves her in bed 22 hours a day Even this interview could cost her months of health But she spoke anyway, because millions are suffering in silence, and she knows her voice might help them be heard www.bbc.com/sport/athlet...

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A blog about the multiple reasons why I keep fighting. Why I thus far stay alive. "The fight against the injustice done to the patient community is a big driver. I just can't and won't shut up about it!!!” anilvanderzee.com/staying-aliv... #pwme #myalgicE #millionsmissing #severeME #MECFS

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Carole Bruce
18 October 2026 10:48

There are no commissioned services or specialists within the NHS. This means people diagnosed with #ME are forced to self-fund appointments with private ME specialist doctors, of which there are only a handful of in the country, all with incredibly long waiting times.

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Carole Bruce
18 October 2026 08:56

This from Beth Dobbin 👇 is why #ME patients avoid A&E, ringing the Dr, doing testimonial videos to raise awareness, talking to HCPs. We often can’t talk to our families or friends, our carers or helpers. Often a case of choosing between talking or eating. This is the reality 🤐

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Adam
18 October 2026 08:50

“Just having a conversation… can impact you afterwards. When I say impact you, you feel like you're dying basically.” Former Olympic sprinter Beth Dobbin describing post-exertional malaise the hallmark symptom of #ME.

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