Brian S. Mah

ranmah76.bsky.social

22 October 2026 08:18

I have something called "stiff person syndrome." If feels like MS. In my case i was exposed to some kind of radiation from 9/11. Tests r still pending. This could be what Christina has. It more common for women than guys. Celine Dion is a well known case. My joints hurt 24/7.

Erminatrix

ermineator.bsky.social

22 October 2026 08:18

At the age of 50, I got a diagnosis of a condition that manifested in my early teens. It took that long for a doctor to diagnose it, despite multiple surgeries and countless tests directly as a result of the condition. Being told "it is not MS" hasn't made her symptoms vanish.

Lulucaliente

lulucaliente.bsky.social

22 October 2026 08:18

I hope that she finds healing and comfort. I have a very close friend with MS, her courage in facing the daily pain and fatigue while having to clap back against folks who dont understand what chronic illness can look like, makes her and all in that situation heroes in my eyes.

arcticfox87.bsky.social

22 October 2026 08:15

So true! That situation left me more desperate, with my GP finally saying (before I was finally diagnosed) "Stop trying to find out what's wrong" !!!!!

researchdoom

bananaintherama.bsky.social

22 October 2026 08:15

Absolutely, I was genuinely shocked that people couldn’t get how much worse this will be for her, and those in the same situation. We’re facing a monumental crisis of empathy, people can’t just seem to be able to imagine what it’s like to be someone else. People, read books, diverse ones, please 🤦‍♀️