Lupus Europe
lupuseurope.bsky.social
Lupus Europe is the umbrella association of currently 31 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.
👤 Joined on 05 February 2025
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- 05 Şub 2025, 07:09
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
@lupuseurope.bsky.social
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Preparing for a specialist appointment? 🩺 @lupuseurope.bsky.social have created FREE Lupus Consultation Cards to help people with #lupus prepare for consultations by identifying symptoms and preparing questions for their #healthcare team. 🔗Learn more: https://bit.ly/3Sn75yV #LupusPatientSupport
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A big deal! New patient-shaped tool to assess brain fog in lupus patients. In my experience doctors don't like to talk about this. Sharing in case it may help others w brain fog from various causes. See the tool questions below
Show PostAlso is the LBFSS available for use right away by rheumatologists? Wasn't sure what next steps are.
Show PostThis is fantastic and so urgently needed. Amazing process to achieve an amazing outcome. Seeing the domains, the questions, and the results was affirming. Thank you! 💜
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🌍 #WORDDay2026 is coming up! We’re excited to have Michael Pölzl from EULAR PARE / ENCA joining our webinar: “Children Are Not Small Adults: Why Young People Need Dedicated Paediatric Rheumatology Care.” Register here: https://pulse.ly/mhh6fisdu4
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