stitchingtwitcher.bsky.social
Spotter of patterns, sometimes wishing I could unsee ME/CFS, Chronic Illness, AuDHD, Still Coviding
👤 Joined on 03 October 2023
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They were right all along! 🙃 @zohrankmamdani.bsky.social @zohrankmamdani
Show PostIt’s so hard isn’t it, with ME/CFS, wanting to be alive so much, wanting to live and love what little of life remains, yet having to curb this so that yet more life isn’t lost.
Show Post1) News from Solve ME: The CDC plans to shorten the National Health Interview Survey (NHIS) so that it no longer includes questions about ME/CFS and Long Covid. The NHIS has previously been used to estimate ME/CFS prevalence at 1.3%
Show Post8 ) Here's the link to the Solve ME article. They are calling on other to submit public comments to the CDC as well and have provided a template for this:
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