Call Me Cassandra

Call Me Cassandra

stitchingtwitcher.bsky.social

Spotter of patterns, sometimes wishing I could unsee ME/CFS, Chronic Illness, AuDHD, Still Coviding

👤 Joined on 03 October 2023

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📜 Kullanıcı Geçmişi

  • 03 Eki 2023, 09:18
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @stitchingtwitcher.bsky.social
  • 10 Kas 2023, 04:04
    🔄 Profil bilgileri güncellendi

❤️ Beğendiği Gönderiler

They were right all along! 🙃 @zohrankmamdani.bsky.social @zohrankmamdani

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It’s so hard isn’t it, with ME/CFS, wanting to be alive so much, wanting to live and love what little of life remains, yet having to curb this so that yet more life isn’t lost.

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ME/CFS Science
19 October 2026 05:41

1) News from Solve ME: The CDC plans to shorten the National Health Interview Survey (NHIS) so that it no longer includes questions about ME/CFS and Long Covid. The NHIS has previously been used to estimate ME/CFS prevalence at 1.3%

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ME/CFS Science
19 October 2026 05:41

8 ) Here's the link to the Solve ME article. They are calling on other to submit public comments to the CDC as well and have provided a template for this:

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