daniellewis.bsky.social
My #LongCovid is mainly #PEM + #POTS + #MCAS
👤 Joined on 08 September 2023
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jessesingal.com
Singer Tiffany, who originally became famous in the 1980s, is battling long Covid which leaves her “battling with chronic fatigue” www.mirror.co.uk/3am/celebrit... Mentions struggling to work out which in my opinion may be risky depending on her symptoms #longCovid
Show PostIn this Project ECHO Long Covid Webinar Series, PLRC co-lead @loscharlos.bsky.social talks to Dr. Alba Azola about the evidence suggesting some #LongCovid patients may have undiagnosed vascular compression. Dr. Azola estimates about 15% of LC patients may have some form of vascular compression.
Show PostNew paper in @thelancet.com ft. PLRC member Dr. Megan Fitzgerald (@themegascope.bsky.social): "In this paper, a group of bioethicists, clinician-scientists and people.. with #LongCovid argue that it is ethically imperative to conduct trials of disease-modifying treatments for LC now." 🧵
Show PostEnrollment is complete in our Phase 2 ADDRESS-LC clinical trial evaluating bezisterim for the treatment of neurological symptoms of Long COVID, with topline data expected in late summer 2026. Learn more: investors.bioviepharma.com/news/news-de...
Show PostThe FDA just extended this deadline until July 11—if you haven’t yet commented, there’s plenty of time left!
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