Ehlers-Danlos Daily
ehlersdanlosdaily.bsky.social
Hi, I'm Lauren. I'm a US-based artist (LaurenRubinArt.com; thank you for your support!) and a zebra (EDS, POTS, epilepsy, MCAS...should I go on?). This account is specifically for those who want to keep abreast of news and information of interest to EDS.
👤 Joined on 22 September 2023
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- 22 Eyl 2023, 22:17
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@ehlersdanlosdaily.bsky.social - 10 Kas 2023, 03:05
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I am affected by this. Was diagnosed with Conversion disorder 10 yrs ago, took 9 years to get my Ehlers-Danlos diagnosis. Also took changing GP and pushing to be believed. (And $$$$ to go private)
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Oh I’ve remained basically nocturnal, I’m just annoyed every morning that I didn’t even sleep until my alarm. Grumbling intensifies. So getting up even earlier than that is right out.
Show PostThe funny thing to me about conferences for chronic conditions is how borderline impossible it is to plan for everyone. For example lately I can’t sleep because of joint pain so I’m always tired… and it starts at 5:45 am. (I’ll probably get a ticket and watch a replay, I just find Catch-22s funny.)
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