paulwatton.bsky.social
I was "TheGodofPleasure" on Twitter. I've had M.E. most of my adult life and am still trying to find a way out of it. I believe that Prof. Bhupesh Prusty is close to providing the answers.
👤 Joined on 14 November 2024
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@paulwatton.bsky.social#MEAwarenessMonth – Day 15 2016: ME patient Alem Mathees wins a court order forcing Queen Mary Uni to release the PACE data. The uni’s harassment claims are found to be “grossly exaggerated.” The 2 year ordeal contributed to a severe relapse, and Alem remains bed bound today.
Show PostIt is sad to see @bmj.com platforming quack therapies in 2025 The mind-over-matter approach to #MECFS has been debunked for years, but a cadre of psych devotees in the UK persist in peddling evidence-free miracle cures Pure and utter pseudoscience #pwME #LongCovid @georgemonbiot.bsky.social
Show Post#MECFSAwarenessMonth – Day 13 2015: A landmark report in the US reviews 9,000+ studies and concludes ME/CFS is a “serious, chronic, complex” disease — not psychiatric. It identifies post-exertional malaise as a key diagnostic feature and helps shift understanding.
Show Post#MECFSAwarenessMonth – Day 12 2011: Ian Gibson MP highlights a high-level block on biomedical #MECFS research. A study also reveals nurses’ frustration delivering psychological treatments — one supervisor reported a feeling of, “the bastards don’t want to get better.”
Show Post#MECFSAwarenessMonth – Day 11 The Science Media Centre, which has strong ties to Wessely, launches a media campaign portraying #MECFS patients as dangerous activists who threaten researchers - it discredits patients and diverts attention from valid concerns about research.
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