Shout🇨🇦

Shout🇨🇦

shoutshoutletitout.bsky.social

Chaotic mix of politics and ME/CFS

👤 Joined on 29 November 2023

1208

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854

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📜 Kullanıcı Geçmişi

  • 29 Kas 2023, 07:34
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @scoutscout.bsky.social
  • 29 Haz 2025, 04:06
    ✏️ Kullanıcı adı değişti: @scoutscout.bsky.social → @shoutshoutletitout.bsky.social

❤️ Beğendiği Gönderiler

Yann (ME/LC)
18 October 2026 23:29

The deadline is in a day or two and it’s relatively low effort since it’s a template. I recommend people to submit.

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ME/CFS Science
18 October 2026 23:29

8 ) Here's the link to the Solve ME article. They are calling on other to submit public comments to the CDC as well and have provided a template for this:

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ME/CFS Science
18 October 2026 23:28

7) The value of NHIS for ME/CFS prevalence estimates is quite limited but I would probably support including the question anyway. Perhaps in the future if awareness of ME/CFS increases, self-reports might also become more reliable.

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ME/CFS Science
18 October 2026 23:28

6) We've previously analysed ME/CFS data from NHIS and unfortunately think they are quite unreliable (the age distribution for example didn't match what is known about ME/CFS). For more info see this analysis on the S4ME forum:

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ME/CFS Science
18 October 2026 23:28

5) This is just a proposal and the CDC’s National Center for Health Statistics (NCHS) has asked for comments and feedback. Solve wrote a detailed reply urging them to keep questions about ME/CFS and Long Covid in.

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