shoutshoutletitout.bsky.social
Chaotic mix of politics and ME/CFS
👤 Joined on 29 November 2023
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@scoutscout.bsky.social@scoutscout.bsky.social → @shoutshoutletitout.bsky.socialThe deadline is in a day or two and it’s relatively low effort since it’s a template. I recommend people to submit.
Show Post8 ) Here's the link to the Solve ME article. They are calling on other to submit public comments to the CDC as well and have provided a template for this:
Show Post7) The value of NHIS for ME/CFS prevalence estimates is quite limited but I would probably support including the question anyway. Perhaps in the future if awareness of ME/CFS increases, self-reports might also become more reliable.
Show Post6) We've previously analysed ME/CFS data from NHIS and unfortunately think they are quite unreliable (the age distribution for example didn't match what is known about ME/CFS). For more info see this analysis on the S4ME forum:
Show Post5) This is just a proposal and the CDC’s National Center for Health Statistics (NCHS) has asked for comments and feedback. Solve wrote a detailed reply urging them to keep questions about ME/CFS and Long Covid in.
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