Jean Swidler

Jean Swidler

jeanc9orf72.bsky.social

Genetic ALS & FTD Advocate, C9orf72 Carrier , Executive Director Genetic ALS & FTD : End the Legacy - East Bay California

👤 Joined on 21 September 2023

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137

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  • 21 Eyl 2023, 01:51
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @jeanc9orf72.bsky.social
  • 10 Kas 2023, 01:29
    🔄 Profil bilgileri güncellendi

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❤️ Beğendiği Gönderiler

Proud to promote Measure RTM, @votemjforec.bsky.social and @carolynwysinger.bsky.social! We must pass RTM to maintain robust transit service & prevent disastrous cuts. I'm excited to endorse Jawili & Wysinger for their positive visions for El Cerrito & strong support for housing, biking & walking.

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20 February 2026 15:21

The Search for A Self Cure explainer series from our Community Science Liaison Dr Yentli Soto Albrecht has a new chapter today with a fascinating interview with Dr Phil Wong of Johns Hopkins Read the blog post and see the video at https://www.endthelegacy.org/search-for-a-self-cure

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18 September 2025 16:19

We congratulate Mindy Uhrlaub for award from ALS-TDI. Consider joining her to celebrate this achievement: “ I'm so honored to be receiving this award from ALS TDI and I hope you'll join me at the White Coat Affair on October 18th in Boston! Details and tickets can be found at www.als.net.”

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18 September 2025 16:19

Nous avons le plaisir de vous annoncer que notre première réunion en français aura lieu le jeudi 25 septembre à 18h, heure de Paris. Si vous souhaitez pouvoir vous connecter, il faut adresser un mail avec votre demande au : info@endthelegacy.org #c9orf72 #sod1 #endthelegacy #als #ftd #sla

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18 September 2025 16:19

With our new Community Science Liaison Fellowship we will support a developing researcher who is late in training or early in their career with an annual stipend to enable participation in and travel to conferences. Learn more and apply here: https://www.endthelegacy.org/communitysciencefellowship

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