jeanc9orf72.bsky.social
Genetic ALS & FTD Advocate, C9orf72 Carrier , Executive Director Genetic ALS & FTD : End the Legacy - East Bay California
👤 Joined on 21 September 2023
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@jeanc9orf72.bsky.socialProud to promote Measure RTM, @votemjforec.bsky.social and @carolynwysinger.bsky.social! We must pass RTM to maintain robust transit service & prevent disastrous cuts. I'm excited to endorse Jawili & Wysinger for their positive visions for El Cerrito & strong support for housing, biking & walking.
Show PostThe Search for A Self Cure explainer series from our Community Science Liaison Dr Yentli Soto Albrecht has a new chapter today with a fascinating interview with Dr Phil Wong of Johns Hopkins Read the blog post and see the video at https://www.endthelegacy.org/search-for-a-self-cure
Show PostWe congratulate Mindy Uhrlaub for award from ALS-TDI. Consider joining her to celebrate this achievement: “ I'm so honored to be receiving this award from ALS TDI and I hope you'll join me at the White Coat Affair on October 18th in Boston! Details and tickets can be found at www.als.net.”
Show PostNous avons le plaisir de vous annoncer que notre première réunion en français aura lieu le jeudi 25 septembre à 18h, heure de Paris. Si vous souhaitez pouvoir vous connecter, il faut adresser un mail avec votre demande au : info@endthelegacy.org #c9orf72 #sod1 #endthelegacy #als #ftd #sla
Show PostWith our new Community Science Liaison Fellowship we will support a developing researcher who is late in training or early in their career with an annual stipend to enable participation in and travel to conferences. Learn more and apply here: https://www.endthelegacy.org/communitysciencefellowship
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