Kelly

broadwaybabyto.bsky.social

03 December 2024 14:10

“As able-bodied person, you trust your doctor is going to steer ship if something pops up. if I were to wait for them & not be proactive, my health would have continued to decline” Excellent article by Matt McGorry about stigma of Long Covid, difficulty getting care & learning from disabled people

GC

thepotspostman.bsky.social

27 November 2024 13:49

I think most "healthy" people who don't have a chronic illness, think doctors can cure every ailment. That it can't ever be that bad, they can just go to the doctors to get whatever it is fixed. The illusion is definitely shattered when you have an illness that can’t be cured. #POTS

A Mortem Venous

gritsyross.bsky.social

27 November 2024 13:23

Abled people are so uncomfortable with the idea of dynamic disabilities & gradations of disability. They only understand the binary, e.g. spinal cord injury. What of those who can walk, but it hurts? How much pain is the right amount to bear? How much fatigue is warranted to perform how many tasks?

Open Medicine Foundation (OMF)

openmedf.bsky.social

26 November 2024 20:17

Linking Brain Blood Flow, Neuroinflammation, Metabolism, and Hormones in #MECFS, #POTS, and #LongCovid 🔗 Learn more about this study directly from Christopher Armstrong, PhD: ow.ly/O99i50Ug1KO There’s only ONE WEEK LEFT to triple your impact. Donate hope: www.omf.ngo?form=TGN2024

@BendyHEDS&Co

bendyhedsandco.bsky.social

26 November 2024 20:13

🚨⚠️ URGENT PETITION ⚠️🚨 #NHSProtocol4SevereME #pwME #ME #POTS #Dysautonomia #Gastroparesis #EDS #HSD #MCAS #MedEdUK