chronicadvocate.bsky.social
Jordan is a student patient advocate creating a safe space for all those with chronic conditions
👤 Joined on 30 January 2025
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- 30 Oca 2025, 00:15
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
@chronicadvocate.bsky.social
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I call myself a Zebra patient. All of my life docs have written “idiopathic” in my chart. They hear me but keep looking for horses when they hear hoofbeats. I tell them I’m an exotic but they hear histrionic, woman. Glad medical advances proving all my “rare” conditions exist. Some relief would be 🎁
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Yes. Communicate. Talk about things. Listen.
Show PostYou definitely are a warrior! Supporting others as you navigate your own health struggles! I appreciate you.
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