Lynn Laidlaw
lynnlaidlaw.bsky.social
Living with a rare rheumatic disease and MLTC’s Vocal about Co production and Public Patient Involvement. Peer researcher Interested and involved in Health research/ Policy Trustee @hsruk.bsky.social
👤 Joined on 25 October 2024
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- 25 Eki 2024, 01:11
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That seems to be the general consensus!
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The paper in question- more reflections soon link.springer.com/article/10.1...
Show PostVery much agree. It'll all be about 'embedding' but who will co-ordinate & provide the vision or expertise to do it well/drive improvement? + describing it as everyone's business devalues the knowledge and skills needed to do PPIE well (our paper *ahem*) 😟
Show PostAnd this will be very disheartening news to all working to advance PPIE whether funded by NIHR or not. They justify this by saying ‘this activity is everyone’s business’. But guess what: we can all read between the (corporate) lines.
Show PostWow: this morning we hosted an @arc-southlondon.bsky.social event on research inclusion in which @drsoapsub.bsky.social warned us about the current dilution and lack of investment in lived experience involvement. This seems an uncanny confirmation of their words
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