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Cure MAPT FTD

@curemaptftd.bsky.social did:plc:wcnxyvlz44wen2uewp2skfeo

Our mission: raise awareness of the MAPT genetic mutation; assist a global network of families; and advocate for trials that will cure MAPT FTD.

Bluesky’a katılma tarihi:

Takipçi
142
Takip edilen
151
Post
48
Sıralamaya girdiği gün
0

Özet

Cure MAPT FTD (@curemaptftd.bsky.social), 22 Aralık 2024 tarihinde katılan bir Bluesky kullanıcısı. 142 takipçisi var, 151 hesabı takip ediyor ve 48 post paylaştı.

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Son beğendiği postlar

Bluesky ağındaki herkese açık beğeniler.

  • The Association For Frontotemporal Degeneration@theaftd.bsky.social

    📚 Meet author Robert Kolker and Barb Frommell, Chair and Co-Founder of @Cure Mapt FTD, at the Austin Walk for FTD! Robert’s The Vanishing Family shares Barb’s family’s story of genetic FTD and advocacy. 📍 Gilleland Creek Park | Austin, TX 📅 November 14, 2026 👉 Sign up: https://bit.ly/4zTCJU

    Postu göster
  • gbhnews@gbhnews.bsky.social

    Under the Radar searches its archives and highlights the work of Robert Kolker and Tayari Jones — authors selected by both Oprah Winfrey and GBH’s Callie Crossley for their book clubs. https://bit.ly/4dccfoP

    Postu göster
  • Bob Kolker@robertkolker.com

    Thanks to NPR and Scott Simon for the chat about THE VANISHING FAMILY this morning on Weekend Edition. www.npr.org/2026/09/26/n...

    Postu göster
  • André Picard @picardonhealth @picardonhealth.bsky.social

    Soon we’ll all be able to see our medical futures -- whether it’s a genetic cancer risk, likelihood of dementia, or a familial pattern of mental illness. But do we really want to gaze into the crystal ball? by @robertkolker.com www.theglobeandmail.com/opinion/arti... via @theglobeandmail.com

    Postu göster
  • Bob Kolker@robertkolker.com

    Thx @bookpage 🙏 "With this book, Kolker can claim the title of the Ann Patchett of nonfiction family dramas: He infuses intimate, cataclysmic moments with emotional acuity, allowing readers to feel both embedded and invested in his subjects’ unimaginable challenges." www.bookpage.com/reviews/the-...

    Postu göster

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