Angioedema News
@angioedemanews.bsky.social did:plc:gu74awbzyfvmnptbocdxrjkn
Your source for angioedema news, support, & real stories from the community. Let’s raise AE & HAE awareness together!🎗️
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Resumo
Angioedema News (@angioedemanews.bsky.social) é um usuário do Bluesky desde 3 junho 2025. Tem 42 seguidores, segue 80 contas e publicou 1.934 posts.
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Curtidas públicas da rede Bluesky.
Set alarms for reminders, plan ahead.
Ver postWe've got four cats here, Sometimes I enjoy having them around and other times I get stressed out having to clean up after them all the time, so it's a trade off really. I couldn't honestly say they have impacted my HAE one way or another. Good to find this HAE page though
Ver post@angioedemanews.bsky.social Good to find your page, can't seem to find much of a HAE community on Bluesky
Ver post3 years ago I was prescribed #Orladeyo for #hereditaryangioedema. Since then I’ve been taking my life back, worked through #medicalPTSD, and other life stuff. Can’t believe in a week I will graduate with an AAS in #Horticulture. This has been an amazing journey. #happiness #goals #nevergiveup
Ver postWhere is my chronic illness and rare disease girlie at? I had a wonderful community of you on TikTok. I have MCAS Hereditary Angioedema & CIDP The world's worst lottery!! The photo is me in a bad flare In the icu in December #chronicillness #raredisease #hereditaryangioedema #cidp #mcas #cidp
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