Brain Tumor Social Media Chat

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• Dr.rer.pol. Sabine Schwab@sabine-nj.bsky.social09/06/2025 00:00

  A4: Simply the fact that I am alive still keeps me going. I know that many others don’t have that privilege and I want to speak up for those who no longer can’t. If you start today, don’t be discouraged by others who have been in this for many years. Start small. Every voice counts! #btsm

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• Shawn Carey@shawncarey42.bsky.social08/06/2025 23:51

  Q4: For me, it's about keeping my mom's story alive. She deserved so much better and I am going to make sure other families like mine get a better experience than what we went through. If you are new to this space, keep showing up for yourself and your loved ones. #btsm

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• Stuart Selby@stuartselby.bsky.social08/06/2025 23:44

  A3. We don't have a direct Canadian equivalent of @braintumor.org 's Head To The Hill but I think it's a great approach! There's much we can learn from different organizations where we grow ideas to fit our local needs while collaborating and sharing internationally. #BTSM

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• Dr.rer.pol. Sabine Schwab@sabine-nj.bsky.social08/06/2025 23:39

  A3: Some organization, like @braintumor.org already do a great job with policy advocacy. We can help by not stopping to share our stories, calling our representatives, and being hopeful that breakthroughs, advancements, and treatment options won’t be completely eradicated. #btsm

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• Stuart Selby@stuartselby.bsky.social08/06/2025 23:33

  Hi, everyone! I'm Stuart, also joining by the orange bubble in the @btsmchat.bsky.social account, and introduced there. I'm here to join in the conversation, though I've scheduled my posts with @buffer.com while away from my computer, so I might not reply to any other comments for a while! #BTSM

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