CT Rare Advocate
@rarectadvocate.com did:plc:sdy3iizxbedjaaxdtytw5l2c
Rare Disease advocate in CT. Raising Awareness and advocating for Rare Diseases patients and caregivers. 🔗 https://rarectadvocate.com - Archive and Rare Disease Resources You may be rare, but you're not alone! #rareDisease #rareDiseaseAwareness
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Resumen
CT Rare Advocate (@rarectadvocate.com) es un usuario de Bluesky que se unió el 15 febrero 2025. Tiene 92 seguidores, sigue a 50 cuentas y ha publicado 671 posts.
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Rare New England's exhibits + talks were so inspiring this weekend - rewarding to join as a speaker! A focus on "Advancing Rare Together" with storytelling + advocacy was precious to share as a rare mom, geneticist + memoir author. 🦓 #raredisease #rarediseaseawareness #Sheshed #Booksky #Momsky
Ver postThank you!!
Ver postMy mother had kidney disease caused by a high fever that lasted too long, but she also had hypothyroidism, and type II diabetes that was caused by kidney disorder (treatment). (We lost her to a stroke, July, 2021 🖤) 👀 alt text
Ver postSupport your loved one without burning out — start putting your needs first: https://bit.ly/4nm2CWL Caregivers, find simple strategies for self-care to stay strong and effective. #Caregivers
Ver postI get this sometimes with migraines & cluster headaches.
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