Living Not Existing
@livingnexisting.bsky.social did:plc:qznn7fb7hzyvedrzvjo5does
Reaching out to others with #ME/CFS. Learning to live a new life after Sepsis
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Living Not Existing (@livingnexisting.bsky.social) es un usuario de Bluesky que se unió el 29 septiembre 2023. Tiene 210 seguidores, sigue a 495 cuentas y ha publicado 60 posts.
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Hi everyone, I’m new to Bluesky but we’ve been working on something 🙏🏼 I’ve written a second letter to Andy Burnham, alongside 360 sports people, to urge him to meet with me and fund research into my much neglected health issue which impacts millions of others.
Ver postEveryone follow and give Beth Dobbin some love immediately! She’s putting way more energy than she can afford into getting funding for the horrific disease #ME for the sake of all of us. *A disease that has multiplied exponentially since the beginning of the pandemic #LongCovid
Ver postWe're happy to share that we now have an MP briefing live (joint with @actionforme.bsky.social) which you can send to your MP to give them all the info they need to support Beth Dobbin in her campaign for increased ME research funding. The briefing and our template are linked below👇
Ver postFrom Beth Dobbin’s letter: “To get the welfare bill down, I believe you need to fund research into this spiralling illness [ME/CFS] and help us all get our lives back." Frustrating to think how little has changed since I made this point in a letter to The Times 20 years ago:
Ver post“Trial By Error: Newly Knighted Anil van der Zee @anilvanderzee.bsky.social Discusses his Royal Honor” By David Tuller @davetuller1.bsky.social virology.ws/2026/09/06/t... #MEcfs #PwME #SevereME
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