geneticallianceuk.bsky.social
@geneticallianceuk.bsky.social did:plc:h5tzthn3rytwdarmxd5mycu4
En Bluesky desde el
- Seguidores
- 30
- Siguiendo
- 17
- Posts
- 22
- Días en rankings
- 0
Resumen
geneticallianceuk.bsky.social (@geneticallianceuk.bsky.social) es un usuario de Bluesky que se unió el 14 marzo 2025. Tiene 30 seguidores, sigue a 17 cuentas y ha publicado 22 posts.
Apariciones en rankings
Los mejores días en que los posts de esta cuenta entraron en la lista diaria de Debya.
Esta cuenta aún no ha aparecido en un ranking diario.
Posts que le gustaron recientemente
Me gusta públicos de la red Bluesky.
More trials, better data, faster access. We worked with Genetic Alliance UK to develop a new report from the LifeArc Translational Centres for Rare Disease Hub, setting out how smarter policy can accelerate rare disease research. Read more 👉 https://t.ly/LJRi4
Ver postThis #RareDiseaseDay, we’re highlighting how open data sharing supports diagnosis, research, and families living with rare conditions. Watch to find out how access to rare disease data through @deciphergenomics.bsky.social can help families better understand their children’s rare conditions.
Ver postEngagement & Support Officer @geneticallianceuk.bsky.social Deliver events & create a supportive community for families in Scotland living with genetic, rare, & undiagnosed conditions. 🕑6-month pilot project - 28hrspw 💵£29,500 pro-rata 📍Scotland (home based) tinyurl.com/5eaxm7hc #engagement
Ver post🎉Today marks one year of the LifeArc Translational Centres for Rare Disease. These four Centres are breaking down the barriers in rare disease research and accelerating the development of new tests and treatments. #RareDisease #LifeArcTCRD #OneYearOfImpact
Ver postThe recent report published by LifeArc and @geneticallianceuk.bsky.social gives several recommendations on how we can #ChangeTheRareFuture and get treatments to people with rare conditions faster. Read it here: t.ly/Ka7qn
Ver post
Cuentas que bloquea
En Bluesky los bloqueos son registros públicos.
Esta cuenta no bloquea a nadie.