The Sumaira Foundation (TSF)
thesumairafdn.bsky.social
TSF is a global nonprofit organization dedicated to raising awareness of rare neuroimmune conditions, building community, supporting research, advocating on behalf of patients. www.sumairafoundation.org
👤 Joined on 12 November 2024
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- 12 Kas 2024, 16:47
🎉 Bluesky'e katıldı - İlk kullanıcı adı:
@thesumairafdn.bsky.social
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Updates continue with neuro-ID and Dr Prashanth Ramachandran So many new things to learn! #AANANC @staceylclardy.bsky.social
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On this #RareDiseaseDay I've reflected on how far I've come since my NMOSD diagnosis nearly 3 years ago - shoutout to my support network of family and friends, and finding new purpose by working with the @thesumairafdn.bsky.social 🩷
Show PostWelcome to all my new followers (can't quite believe I have this many but thank you, starter packs 🙏🏾)! I'm a ✨️recovering academic✨️ a.k.a. global health consultant, podcast host and rare disease patient advocate with @thesumairafdn.bsky.social based in the UK 👋🏾
Show PostWhen rare disease besties link up: Salt Lake City edition 🏔️ Thank you once again @staceylclardy.bsky.social and team - so many memories! 🩷🧡💛 Next stop:📍Seattle with @shuvroroy.bsky.social
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