somethingchronic.bsky.social
Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
👤 Joined on 01 dezembro 2024
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Francesca Albanese on how our mainstream media is part of the genocide in Palestine.
Show PostThanks. I’ve had some slow glacial improvement since my relapse, and know the improvement may may not be linear. I’m hopeful. But he‘s 84 and not in the best health.
Show PostThat being said. I have had varying levels of function over the years. At times the future looked very bleak and then I had improvement. Sometimes from treatment... sometimes for no apparent reason. I am to the point where I never say never. Hope for the best & plan for the worst.
Show Post5 miles can be the same as 5,000. We can only do as much as we can do safely. It's hard for many to understand the reality.
Show PostMy dad lives in a nursing home 5 miles away. It’s been a year since I was well enough to visit and since my relapse it seems quite possible I’ll never see him in person again. #MECFS
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